Perseverance...

This stop on the Pilgrimage is a two-fer, I have emotional and spiritual pain... Both are hard and you don't want them to show at the same time... None the less, they are here and have to be faced.

I have mentioned before that line, "God doesn't give you more than you can handle".  Well that is a lie, and that line is in my Rolodex of Shame... The Rolodex of Shame, is the place where I keep all of the comments from well intended people who say stupid things. You do not want to be in the Rolodex of Shame... Well, because it is shameful...

This line haunts me, and I'm really concerned that the next time I hear it at Mass, I will go up to the priest and lovingly say....

"You good Father, go sit down, I've got this."

Can you even imagine! Promise I won't do it. But it is on my dream list.

Because many days the pain, the suffering, it is much more than I can handle. It is way more than my family, my children, can endure, I try as best as I can to put a smile-on; and remind myself that there are people who are suffering and have problems far worse than mine. While that is very true, I don't want to be in the business of minimizing my reality.

This burden, this brokenness of body, is heavy and far from light.  That is what makes a Pilgrimage hard. You journey in all weather, you get blisters, you are sore from your pack, you are hot in the sun, cold in the wind and rain. But, you continue walking, because you have a path and a plan. Because, I'm always trying to find the spiritual-silver lining. To be optimistic and see the good...

The girls in my 'hood on a warm night love to sneak onto each others porches for a quick glass of wine; this is where we catch-up on the week.  Many who visit my post-WWII 'hood, with our brick colonials nestling next to each other, think we are right out of the '50s. We rarely knock, and everyone knows each other. And when you can't find a child, or an adult; your first inclination isn't panic, you just look in the kitchen or yard next door. Not what you would expect in a bedroom community of Washington, DC. in 2013.

My Jeffrey rolled home early on Friday; and while my body wanted me to just stay on the couch, my spirit wasn't going to miss Friday night greetings. So as I walked in the front door of one house, to cut through the  backyard to the hostess', I realized that the 100 ft and the natural unevenness of the backyard terrain was trickier than normal, and I was shaking... My body was firing off an internal memo reminding me that it was not cleared for this adventure.

That's pain for you, it's the thief, that robs you...  And I was having none of it.

My girlfriends, saw me unsteady, shaky, as I found the first chair. The glass of water I drank, well it felt like the oasis in the desert. None of this was good news;  I knew instantly,  I would need twenty minutes just to have the strength to walk home. My girls faces turned from happy clinking wine glasses, to a group of worried faces; during my quick week update. When I told everyone, I was fine, and I was absolutely fine. "Fine", meant I wasn't going to pass-out, and I would walk myself home...

One of my girls said, "I hope you are offering up this suffering for something/someone really good..." And that got me thinking; was I, doing that or something different?  As Catholics, we believe that suffering is the opportunity to encounter the Divine. Without question, Christ on the cross is suffering, and we also look at the role models of our church the Saints.  Not many of them got off easy, they all suffered, some tremendously. 

And that through suffering, we find the Gift, that without the pain or struggle, we would miss this opportunity of spiritual enlightenment.

Can I just say, I was very happy drinking a diet coke, would prefer not answering the call to "enlightenment". I have a wonderful marriage, beautiful children who occasionally listen, and a great life. I'm good, thanks.

First, not sure I buy this call to Enlightenment.  I'm not so sure I have much to offer... And also, I'm not sure that I want the gift that suffering has to offer.

I want my life back.

I don't want to make lemonade any longer, I wold prefer to drink tequila...

Can we be really honest, when you are vomiting in the toilet from pain, curled up in bed begging people not to touch you or your bed because the vibration hurts.  How do we resolve life, when anger, frustration and disappointment are so present. Or when YOUR body is racked, with such pain that you are short and lacking patience with loved ones.

I wonder if this pain in my body is so much worse because; it's my body that pulled-up stakes on me... It is my body that quit, when my spirit, and will to fight has only gotten stronger... It's a deep betrayal and it's personal. And there is no outside force to occasionally lay the blame on.... It is all mine...

When I planned my life with Jeff, this was never what was planned... EVER. And frankly, I'm pissed about it... God's Silver-Lining?... Because I can't seem to find the return receipt to give it back and get to my "real" life...

It's at these moments, when life is too hard, that I'm grateful to have faith.

To feel in my heart that these moments of desperation and frustration are temporary, all too 

human and deserved, don't last long.  It is my body's cry for help under the weight of pain.  I  WILL  find peace in a short time and these days of spiritual pain will heal.

It is a great comfort that God can take my anger and frustration.  I never envision God as this all white light filled being of Art and Religious books of my youth. I don't picture him in robes filled with gold. I see a gentle beautiful man best described like a St. Francis of sorts, ageless, and timeless.  When I raise my voice and complain about what ails me, drop a bad word or two.  I see that face with the glint in his eye as he looks at me and smiles, "You done?" And then we have tea and chat. That is how I see God.  I see his humanity, I see his simplicity, his calm, and that is why I'm drawn to him.  The silence in the storm.

So while I'm in this quicksand, I will find my footing, and find the peace that both my body and spirit need.  I will find the Divine, in my children, my friends, in communion, and feel the loving arms of my husband. These are the gifts... The lifelines that pull me along, when I'm too tired to continue.  Maybe that is just what the Gift of Suffering is.... Perseverance.

That is why I can smile at the warm breeze of summer, and delight in the happy sounds of basketball on the street. They are my reminders of normal. That it will come...  You see, I see the face of the Divine, everyday, in my children, in my husband, in my mail carrier, who smiles and says daily, "I'm praying for you girl, don't sweat it."  It is all around us, the simplicity of our life, not the fame or the money. 

The gifts are found in how much we are loving the people we are called to serve.

Do I know that the shot will settle in? Yes, absolutely!  And it will create more good days than the pain can cause me to suffer.  I'm an optimist, we can not call ourselves hopeful people otherwise.

Thank you for joining me on the Pilgrimage.

Kathryn, the PilgrimageGal

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The Elephant in Every Room...

The Elephant in Every Room...

The Elephant in Every Room... How are you feeling and other lovely questions...

I have had a beautifully busy last few weeks. I have attended dinner parties, birthday parties, a fabulous sparkling water and wine club with the girls, and some fantastic chats on the green sofa. And I'm struck by a common thread... I'm losing my conversational edge... No, really, I don't know how to do social chit-chat.

On my red pen list of things I'm doing wrong: I'm struggling with how to handle well wishes... How crazy is that?  And I know my friends often struggle with the same... 

These days any social encounter, a quick stop at a store, or just being out and about, I'm treated like a celebrity. People are surprised to see me, so they flock to me to say hello, and I LOVE IT!  Nothing makes someone who has a chronic illness feel better than friends and loved ones who are happy to see you... It fills your soul with an extra energy boost. I'm seldom alone on these outings; and I seem to always have a beauty or two with me, and they smile and hold a hand, happy too, to have me out-and-about!

But inevitably the question comes, "How are you feeling?", and it's a hard-one to answer, because usually it has taken all my energy to be anywhere... For instance at Easter, so many friends gave me hugs, love and told me I looked great and asked, "How are things?" and I didn't know what to say. I either make a joke about my magical make-up skills that cover the dark bags under my eyes and horrible pale skin.  I used the make-up line, five or six times... Or I say "fine", which is a lie; or my gran-daddy answer "horrible", or I say "good-enough", because that is all I have. All of these answers seem wrong or lacking...

My Sunshine Girl always asks me in the most loving way, maybe it's because she is Sunshine...  She asks: "Is it a good day?", and I love that question, it's not about my body, or my mind, or my spirit, it's about all of me... And that works for some reason. Because it gives me more ways to answer. And my answers are more than just how my body is working... Sunshine doesn't even know she asks it that way, it's just how her spirit works, open and honest. It gives me the chance to say it's a perfect day, because my beauty just sang in the choir, or  it's a great day because the sun is out and it feels great on my skin. Or I got to the cake store and we are in the possession of some amazing ingredient... You see, I'm the first one to tell people when I have great news or I feel good...

Now if you are someone who has asked me, "How are you doing/feeling?", don't beat yourself up... I catch myself asking people all the time, to friends who are ill, have parents that are sick, and then I get in the car and kick myself, I know this is not an easy question with a quick answer. Or classic/favorite: ask a pointed question with kids standing around, done that more than a few times too... I'm the one who has the illness; the expert. Nice...

We just all want to fix what is broken, our hearts and minds act so differently... Our hearts won't tolerate the pain of a loved one, and we can't settle in our hearts suffering of any kind. To solve the problem, we allow our mind to act as the "fixer". How are you? What can I do?How can we fix the problem? Men hold doctorates in this. Men are hardwired to fix, that's why women get so frustrated; we want them to listen and feel... And we are all too aware, not everything can be fixed. 

There is nothing wrong about any of it... And sometimes it's fine to ask, when I'm alone... But some days you just want to give your chronic disease a holiday, and you from always being known as the sick girl.

Go back to my celebrity analogy for a second, you wouldn't go up to Meryl Streep if you saw her in a restaurant with her kids having a family meal to say, "Hi, I'm your biggest fan, can I have your autograph and talk about your theory on acting"... Listen, I'm not trying to say I'm a zillion time Oscar winner, or I'm better than anyone else... I'm just saying, sometimes Meryl wants to be Mom, wife, girlfriend, not Academy Award wining actress...

Does this make sense at all? Or do I sound like some crazy snob? That is not my point, and if that is your takeaway, I have completely failed in this post. It's just, I'm so happy to be out and about, I want to talk about you, your family, can we gossip about shoes, spring trends, or kids?  Normal stuff and give my chronic disease a day off... 

And to be honest, sometimes I worry that I have lost my cocktail party banter, that I can't talk about anything else...

But, I do understand, it's a double edge sword, because I/we/all chronically ill folks, don't want to be forgotten, and do want you to ask how we are... So it is a fine line... At times, I'm more worried about you, I don't want you to be disappointed when I tell you that my life is hard, and my pain is really bad, and I'm going to be in bed in an hour because I gave all my energy away... 

I do love a quick email that says, "give it to me, what is the latest", and I will speak my truth if you come over for tea, and we have an hour to visit. 

There is no magical answer.  And I know that it is more about me and how I react to the question, then the question itself.

But, I can tell you what friends have said that I have cherished: the extra hug that says, "you look beautiful", "The kids are so happy, don't worry", "This event was better just because we got to see your face", "I love seeing you on my couch, (and I don't care you are in PJ's)", "Jeff is always smiling with the kids", "I'm so touched you made it, thank you", "I've got this spot on the sofa for you and a blanket", or just the knowing smile that says, you rock Kathryn and I'm all in with you.

This post feels heavy handed, and I don't want it too... We all just want life to be normal again, but that may not be possible.  So this is what normal for me looks like today... 

It all can change in an instant... 

I heard this quote on the news, I wish I had the source; but it's too good not to share:

"Good things are coming, they are already planned for you!" 

Well alrighty then... Lets get to the getting...

More than any post I have written, I want your feedback... So please share your thoughts, your challenges with love ones or your experiences with chronic disease.

And please, feel free to share this post. Sometimes just pulling the curtain back and talking about the Elephant in the Room, helps us all...

Namaste (the divine in me, bows to the divine in you)

xo,

Kathryn

The P

ilgrimage Gal

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The Many Faces of Pain...

Ecstasy of Saint Teresa,

1647–1652 Cornaro Chapel, Santa Maria della Vittoria, Rome

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We all face pain in our life, the stub toe on the way to work, the toothache that won’t quiet and the countless skinned knee from childhood play.

But some pain is not so fleeting… For some it’s the emotional pain that just can’t be righted, that dark hole that can’t be scaled, still for others it’s the relationship that can’t be fixed and the hearts that will be broken in its wake. 

Or the loss of love, be it the pain of a child, whose dreams weren't realized; or your life long coffee and dance partner, your bed now cold, never to feel their warmth again. 

This is  the real pain that so many face daily… We pass them at the store, getting coffee or at the bank. For years, we sit with them in church or beside them at a football games, never comprehended their pain… So many of us are unable to reach out, make connections, we pass the same faces every day and touch so few… 

Or we suffer and feel no peace…

I feel pain today and it shows… 

It was supposed to be a special day off with the kids, we had shamrock chocolates to make and leprechaun cookies with special “irish” sugar, but it won’t be… I had to call my Irish Soul-Sister 

(ISS).

 The girl next door, at 8am and say I need you for five. I need her help putting a pain patch on my back. My ISS was there before the phone touched the cradle.

My ISS, well she can’t hide it from me, her face showed the worry of  watching my face illuminated in pain. We have been through it all in the last years… We know the shorthand of each another. It’s the voice, the way she runs her hands to her hair, when she can no longer take another thing, everyone else misses it, but I know it. We feel each other’s weak spots. One look and we can guess the struggle. We know the places to guard and never surrender. We know each other’s hidden stories. Women have this for one another. Maybe it’s the centuries of our men off at war, while the women raise, run, and protect civilization…We just love… And that is why pain will not overrun us.

This body, my body, is weak and broken. It hurts just to breath, much less move, it hurts to talk, to raise my voice to its normal sparkle… I’m so hoarse, from inflammation, from pain… I’m on my couch, with the sunshine warm on my face, and the sun also warms my soul and reminds me that we must continue, there is no retreat...

My Beauties can see it today, too.  They sense it and see me struggle. My beautiful children watch with eagle eyes, while I put a Mom smile on  just for them.  When you see the worry look on adults, you can rationalize, educate and teach… 

Not so with your Beauties…. They see a broken parent, and it is scary, and I know, because I lived it…  I watched my father die, I watched my mother fight a brain tumor, and lots of other scary things… Through it all,  I always, always understood when it was really bad... Children are far more intuitive than we give them credit.  

My sweet dear Irish Prince, he starts to act-out and gets a little or a lot fresh. He panics. He has such anxiety.  He then over compensates and wants to tuck me-in, kiss and bless my forehead, and I get a well-powered remote. “Rest mom, watch TV, it will be fine”,  it’s his own home-spun mantra, I can hear him self-sooth, “Rest mom,  watch a little TV,  drink a diet coke, you’re going to be fine, watch TV, and nap”. 

My Princess, she wants to fix, dust, vacuum, and do the laundry… My girl is 7, far too young to take-on the household, but she just wants to keep busy, very, very busy. I can’t think of a woman alive who has not perfected this skill… Stay busy and I won’t notice that the entire world just blew-up. My sweet little girl... she holds it together, until God bless her she can't. Then she is in a puddle on the floor crying... and I scoop her up, and snuggle her in my bed... 

One of my favorite Mystics and Doctors of the Church (what I wouldn't give to have a glass of scotch and talk to her  about the conclave.) is Saint Teresa of Avila. She said and I’m paraphrasing a bit, “pain isn't permanent”. But, she also said to God, “if this is how you treat your friends; it’s no wonder you have so few”.

Seriously, she is going to be a drinking buddy when I get to heaven. St. Teresa, she always gives me hope, I know she has had some good chats with God.

Whenever I’m really sick, or things have gotten a wee bit tricky, inevitably someone pulls out the Hallmark Card God line, “God never gives you more than you can handle.” 

But, sometimes, I’m not so sure…

I'm  overwhelmingly blessed,  I have faith, a husband, family (biological) and the friends who are even greater family and a support system that won't quit... He hasn't given me too much... 

But for some it is too much. For some beautiful souls, well it takes them. Their hearts were too big for their bodies, the pain was too great.  We all know these souls, we have watched them suffer for years of depression, or substance abuse or whatever prevented them from being present with us… to live this life… it overwhelmed them, like a wave coming ashore.

And yet some of us; we don’t go under. Don’t get pulled under by the wave. Why? I think, some of us are able to protect our big hearts outside of our bodies… We are able to open our arms and risk the pain. We are able to see, touch, embrace the gifts we are given.  The Gift of each other… Its more than community, it's our relationships within that community.

That is the gift. We can chose to embrace it, let the ones who love us in… really in… 

Or we can choose to attempt the fight.  Chose to fight, all alone and be in isolation. 

We have the choice…

It is not easy, it is uncomfortable, it is at times very painful… And that is what makes the journey one of hopefulness, of courage, of strength… 

Have we touched, moved and given, who we really are?… These are the ideas, the stories that live long after we do… The life we lead, the people we love… The souls we touch… 

That is the real truth of why pain isn't permanent… But love… Yes, love.

Love is everlasting…